What to do when a child with Down syndrome is born in the family: how to accept and act

The birth of a child is always an exciting and responsible moment for parents. However, when after childbirth or during pregnancy, the family finds out that the child has Down syndrome, it can be an unexpected test. Fear of the future, the unknown, doubts and even feelings of guilt are completely natural emotions in such a situation.

But it is important to understand: Down syndrome is not a sentence. Now there are many methods, programs and resources that help children with this diagnosis live a full life, society is becoming more tolerant, supportive and helps people with this diagnosis to socialize.

In this article, we will tell you how to accept this news, what first steps should be taken and how to provide your child with the best start in life.

1.How to accept the diagnosis?
A diagnosis of "Down syndrome" can be a shock. This is normal, because most parents were not prepared for such news. It is important to realize that all your feelings - fear, sadness, denial - are natural.

How to deal with emotions?
-Give yourself time. Accepting the diagnosis is a process, and it takes time. Allow yourself to experience all the feelings that arise;
-Don't blame yourself. Down syndrome is not a consequence of the actions or inaction of the parents. It is a genetic feature that occurs by chance;
-Talk about your feelings. Communicating with your partner, family or a psychologist will help reduce your level of anxiety.
-Seek support. There are many parents in the world who have already gone through this path. Associations and communities will help you feel that you are not alone.

Practical advice:
Contact a parent's club or organizations that help families raising children with Down syndrome. Communicating with other families will remove the unknown and help you find answers to questions.

What should you do in the first months of a child's life?
Once the initial emotions subside, it is important to focus on specific actions that will help your child receive quality care and support.

✔Medical examination:
Children with Down syndrome have an increased risk of concomitant medical conditions, so it is necessary to undergo a comprehensive examination:
-Cardiologist - about 40-50% of children have congenital heart defects. An ultrasound of the heart will help assess the situation.
-Endocrinologist - it is necessary to check the function of the thyroid gland, as there is a risk of hypothyroidism.
-Ophthalmologist - possible vision problems that need to be corrected as early as possible.
-Otolaryngologist - hearing impairment is often found in children with Down syndrome.

✔Early development and rehabilitation:
A child with Down syndrome needs early support in the development of motor skills, speech and social skills. The following will be useful:
-Physical rehabilitation and massage to improve muscle tone;
-Speech and language therapy sessions;
-Sensory integration for better perception of the world.

Practical advice:
Contact a neurologist at the International Center for Rehabilitation and Neurophysiology for an examination. Our specialists will examine the child and select a rehabilitation course that will help the child develop as best as possible and acquire the necessary skills.

Do not wait and do not waste time, because the sooner you seek help and start working with the child, the easier it will be in the future.

3.Social support
Children with disabilities have the right to receive financial support from the state and to undergo a course of necessary rehabilitation under state programs. You can read more below:

-Financial social assistance to persons with disabilities since childhood and children with disabilities from the state:

-Rehabilitation of disabled people under resolution 309 in the MCRC;

-Rehabilitation under the medical guarantees program from the National Health Service in the MCRC;

-Rehabilitation under the “Care” program for children with disabilities from the Kyiv region

4.How to help a child reveal their potential?
Children with Down syndrome can learn, communicate, develop talents and live a happy life. The main thing is the right approach and support.

Key factors for successful development:
-Individual learning program - adaptation of methods helps children better absorb the material;
-Game learning format - children learn best through play, interactive exercises, communication;
-Regular socialization - it is important to introduce the child to other children, to participate in joint activities.

Example:
If a child shows interest in music - it is worth enrolling him in a music school. Many children with Down syndrome have excellent memory and rhythmic abilities.

5.How to overcome stereotypes and find support?
Unfortunately, there are still myths about children with Down syndrome in society. However, today they can study in regular schools, work and be part of active life.

What can parents do?
-Talk to others about their child, do not hide it. but conduct educational activities for people;
-Join organizations that promote inclusion and organizations that unite parents of children with Down syndrome;
- Participate in social events, festivals, initiatives, and most importantly - SUPPORT YOUR CHILD, LOVE AND ACCEPT HER AS SHE IS;

The birth of a child with Down syndrome is a special journey, but it can be filled with love, discoveries and achievements. The main thing is not to be afraid, to seek support and to believe in your child. He can do more than he seems, and with your help he will reveal his unique potential.

?Love your child
?Do not be afraid of the future
?Be open to opportunities

Every child is unique, and your love will help him become the best version of himself.

We are waiting for you at the MCRN. Here you will definitely find support, help and a community that will inspire?